Congenital Heart Defect Awareness Week!!

February 5, 2017

It’s almost officially our week!!

February is in full gear and that also mean it’s Heart Month.

This is a big month for people me living with heart disease. But mine kind of heart disease is not what you might be thinking and that’s ok. The whole point of this week is for people like to share and spread awareness of Congenital Heart Disease. Any kind of disease is horrible and I would not wish upon anyone, but as someone who struggle with a specific disease that needs more awareness, I hope to showcase this week what congenital heart disease is all about and to ask for the continuation of prayers for a cure.

Did you know that every 1 in 100 babies is born with a Congenital heart Defect?

Presently, there is no cure.

Most babies and adults will face multiple Open Heart Surgeries.

Due the trauma of a major and sometime multiple surgeries, most if not all suffer from anxiety and depression.

Our Surgeons and Doctors are our biggest hero’s.

Our families see the good, bad and the ugly, will never leave our side and mean everything to us. They will sleep upright in hospital chairs, listening to the beeping of machines for days, barely eating and showering for days.

There are many black and purple bruises from constant bloodwork in our arms and hands.

A beautiful, but sometimes hard to look at scar will be on your chest forever.

And SO much more…

These are just a few things of what it’s like it to live with this disease.

There are days where I think I could definitely live without this disease, but then there are more days where I realize this is God’s will for my life and it truly is a beautiful journey of hope and fait each and every day.

Happy CHD Awareness Week!!! Let’s rock our scars and share who we are!!!!

How are you spreading awareness? I would love to here it!

You Might Also Like

No Comments

Leave a Reply